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Abstract
Introduction The majority of adolescents do not meet guidelines for healthy behaviours, posing major risks for developing multiple non-communicable diseases. Unhealthy lifestyles seem more prevalent in urban than rural areas, with the neighbourhood environment as a mediating pathway. How to develop and implement sustainable and effective interventions focused on adolescent health and well-being in urban vulnerable life situations is a key challenge. This paper describes the protocol of a Youth-centred Participatory Action (YoPA) project aiming to tailor, implement, and evaluate social and physical environmental interventions.
Methods and analysis In diverse urban environments in Denmark, the Netherlands, Nigeria and South Africa, we will engage a dynamic group of 15–20 adolescents (12–19 years) growing up in vulnerable life situations and other key stakeholders (eg, policy makers, urban planners, community leaders) in local co-creation communities. Together with academic researchers and local stakeholders, adolescents will take a leading role in mapping the local system; tailoring; implementing and evaluating interventions during participatory meetings over the course of 3 years. YoPA applies a participatory mixed methods design guided by a novel Systems, User perspectives, Participatory co-creation process, Effects, Reach, Adoption, Implementation and Maintenance framework assessing: (i) the local systems, (ii) user perspectives, (iii) the participatory co-creation process, (iv) effects, (v) reach, (vi) adoption, (vii) implementation and (viii) maintenance of interventions. Through a realist evaluation, YoPA will explore why and how specific outcomes were reached (or not) in each setting (n=800–1000 adolescents in total).
Ethics and dissemination This study received approval from the ethics committees in Denmark, the Netherlands, Nigeria and South Africa and will be disseminated via various collaborative dissemination activities targeting multiple audiences. We will obtain informed consent from all participants. We envision that our YoPA co-creation approach will serve as a guide for participation of adolescents in vulnerable life situations in implementation of health promotion and urban planning in Europe, Africa and globally.
Trial registration number NCT06181162.
- adolescents
- community-based participatory research
- behavior
- health equity
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Strengths and limitations of this study
By introducing teen-centred evidence-informed co-creation—combining a participatory and complex systems approach—Youth-centred Participatory Action (YoPA) proposes a novel approach to the complex challenges of physical inactivity and health inequalities.
YoPA contributes to theory-building and the evidence base on why and how environmental interventions work (or not) by applying a realist evaluation in diverse, multicountry contexts.
YoPA fills research gaps in health behaviours and non-communicable diseases within sub-Saharan Africa and the involvement of adolescents in shaping their physical and social environments.
The complexity of the public health problem and context-specific approach prohibit a randomised controlled trial design.
Developing actions that change the system is highly ambitious and the involved stakeholders may not have the ability to fully implement the required structural changes within the timeframe of the project.
Introduction
Insufficient physical activity is associated with many non-communicable diseases (NCDs) and responsible for >5 million deaths worldwide each year.1 Public health guidelines recommend at least 60 min/day moderate-to-vigorous physical activity for youth.2 An alarming large number of adolescents do not meet these guidelines: at global level, 78% of boys and 85% of girls between the age of 12 and 18 years.3 Girls are generally less active than boys3 and European adolescents with migrant or ethnic minority backgrounds are generally less active than adolescents from the majority population.4 As a result, many adolescents have an increased risk of developing physical inactivity-related NCDs, both physical (eg, obesity, diabetes) and mental (eg, reduced well-being, anxiety, depression).5–7 Moreover, recreational activities are an effective coping strategy for many and have a positive effect on reducing stress, especially when physical activity is combined with social support.8 The periods of lockdown due to the COVID-19 pandemic exacerbated inequities, and in Europe the percentage of adolescents meeting physical activity recommendations decreased to 9.3% among those aged 9–18 years.9 Periods of lockdown were particularly challenging for the most marginalised groups due to urban overcrowding, lack of public open space and lower levels of access to outdoor activities.
Besides the abundant evidence for the benefits of regular participation in physical activity, over the past decade, excessive sedentary behaviour, specifically recreational screen-based behaviour and shortened sleep have gained increased attention as risk factors for adolescents’ health and well-being.10–12 Thus, a healthier composition of movement behaviours (ie, physical activity, sedentary behaviour and sleep) throughout the 24 hours of the day has important physical and mental health benefits.12 13 Moreover, movement behaviours and their underlying mechanisms interact and might result in a vicious circle of unhealthy behaviours negatively influencing each other.14 Physical activity can also be a powerful tool for promoting health equity through community empowerment, mutual social support ensuring affordable access to sport and recreation services.15
Recognising the importance and urgency of reducing global levels of insufficient physical activity, WHO member states endorsed a global action plan on physical activity16 and agreed to a 15% relative reduction in insufficient physical activity among adolescents by 2030. The International Society of Physical Activity and Health (ISPAH) formulated eight investments that work for physical activity,17 which are supported by robust evidence of effectiveness and have worldwide applicability.18 Recommended environmental and policy approaches include creation and improvement of access to places for physical activity with informational outreach activities, community-scale and street-scale urban design and land use, a pro-active transport policy and practice and community-wide participatory policies and planning.19 Despite these global efforts, most of the evidence on the health benefits of and interventions targeting physical activity is from high-income countries,20 or what are increasingly referred to as ‘Minority World’ countries21 (as in those countries combined the minority of the world’s population lives). This terminology highlights the absence of representation in research in this field from ‘Majority World’ countries. This is particularly relevant for Africa, which accounts for <1% of global research output even though it makes up 12.5% of the world’s population.22 For example, in the field of child development, research from countries in which the majority of the world’s population lives is unacceptably under-represented in most academic journals.23
Many interventions targeting adolescents have had disappointing impact, plausibly because they were implemented top-down, adult-driven and insufficiently tailored to the specific context24 and thus not addressing the real wishes and needs of adolescents. For example, the beneficial long-term effects of regular physical activity on reducing morbidity and healthcare costs are highly relevant for health professionals and policy makers, while for adolescents the more immediate benefits on well-being, directly or indirectly through mutual social support, and having fun are of relevance. Health professionals increasingly call for greater engagement of young people in the measurement of adolescent health issues as well as the development of appropriate targeted interventions to promote their health.25 In programmes that do engage young people, those included are often already confident, articulate and natural leaders.26 Instead, engagement of youth growing up in vulnerable life situations (eg, ethnic minorities, living in socially and economically underprivileged neighbourhoods, those with lower educational levels and managing many uncertainties) in implementation of preventive interventions would have greater impact on closing equity gaps in health and well-being. Therefore, in this paper we introduce the novel design and protocol of the EU-funded Youth-centred Participatory Action (YoPA) project.
The Youth-centred Participatory Action project
Considering the complexity of improving healthy movement behaviours and reducing health inequalities in adolescents, we initiated the YoPA project. The overall aim of YoPA is to optimally tailor, implement and evaluate social and physical environmental interventions using an evidence-informed co-creation approach, for structural improvement in the lifestyle of adolescents (aged 12–18 years) in urban vulnerable life situations in two European and two African cities. YoPA focuses on improving the physical and built environment as well as the social environment considering the importance of friends’ and peers’ influence, and social networks for both physical activity and well-being.27 28 Co-creation is a participatory approach of creative and interactive problem-solving among diverse stakeholders with a shared goal and a shared decision-making process, from collaborative problem identification and solution generation to implementation and evaluation.29 Through co-creation geared towards adolescent empowerment, we aim to enhance personal and collective agency, and in turn, perceptions of autonomy, which have a direct effect on improving health outcomes.30 YoPA aims to contribute to physical activity security which implies that all people, at all times, should have physical and economic access to sufficient, safe and enjoyable physical activity to meet their health needs, and to promote social connectedness and well-being, for an active and healthy life.20 In YoPA, we aim to tackle the following four challenges by creating and experimenting with a YoPA approach in four different countries.
Challenge 1: lifestyles and health inequalities in adolescents continue to worsen
It is crucial to promote healthy movement behaviours in adolescence for multiple reasons: (i) most adolescents fail to meet the three movement behaviour guidelines31; (ii) the trend for decreasing physical activity starts in adolescence32 33; (iii) screen time increases throughout adolescence33; (iv) lifestyle habits, including physical activity and screen time34 35 track from adolescence into adulthood; (v) several NCDs have their origins in childhood and adolescence and persist into adulthood36 37 thus effective interventions in adolescence can have lifelong and intergenerational health implications; (vi) adolescence is a crucial and vulnerable life transition where adolescents acquire emotional and cognitive abilities for independence. How one navigates this transition depends on available opportunities and resources (eg, family finances to allow school attendance); various systems (eg, transportation, social welfare) and broader societal norms (eg, gender). Adolescents in vulnerable life situations such as living in socio-economic underprivileged areas, minority groups and from low educational and income levels, have less opportunities, and are more at risk for unhealthy lifestyles and worse health outcomes than their mainstream peers.38 Living in socially disadvantaged areas doubles adolescents’ risk of engaging in low levels of moderate-to-vigorous physical activity.39
Challenge 2: increasing population density in urban areas limits space for sports and outdoor play
Since 2007, most of the world’s population lives in urban areas with major differences in socio-economic and cultural backgrounds and health.40 The way cities are built, and public space is designed impacts many of our conscious and unconscious behavioural choices, acknowledged in ISPAH investment #3 ‘active urban design’. An international study in 14 cities on 5 different continents showed that adults who lived in the most activity-friendly neighbourhoods engaged in 68–89 min more physical activity per week than those living in the least activity-friendly neighbourhoods. Across vastly different cities spread over 10 countries on 5 continents, people living in neighbourhoods with a higher residential density, a more connected street-network, a good public transportation network and more parks were more active than residents living in other neighbourhoods.41 Active urban design also positively impacts two other ISPAH investments; #6 equitable access to sport and recreation facilities and amenities, such as parks and urban green spaces, promoting recreational physical activity and #2 active transport through more destinations, shorter distances and better walking, cycling and public transportation infrastructure, thereby generating a potential tipping point for promoting physical activity.42 The importance of urban design as well as public and green open spaces in providing a positive, enabling environment for physical activity is well-known.41 43 44 However, the increasing population density in urban areas leads to an increased pressure on the public space and in majority countries to an increase in informal settlements and the global privatisation of public space,45 46 limiting space for sports and outdoor play.47 Scientific evidence supports that the built environment has the potential to affect the long-term health of adolescents by increasing their daily physical activity through a combination of attractive recreational facilities (eg, sport pitches, green spaces, amenities like fresh drinking water).48 49 Nonetheless, current urban environments serve adults and young children better than adolescents.50 Nonetheless, youth have different access to power than the professionals who plan the public spaces of their neighbourhood. Especially girls’ access to public space adapted to their specific needs could be improved.51 To increase effectiveness of socio-environmental interventions, there is a need for studies that consider the perceptions of different intersectional groups of adolescents (eg, boys and girls with varying sociocultural backgrounds) in designing an attractive environment or public space.52
Challenge 3: traditional individual-level behavioural interventions are less sustainable
Physical inactivity is a complex public health problem with multiple interacting influences and feedback loops embedded in social, cultural and physical systems.53 Such complex problems require multiple, upstream and downstream, embedded population-level actions that favourably contribute to reshaping nested systems.54 Effective approaches to tackling physical inactivity will thus require multiple concurrent strategies and actions to be implemented across settings and sectors. However, to date, physical activity interventions have primarily focused on isolated causes and linear relationships with individual-level health outcomes rather than a systems approach that considers the links, feedback loops and interactions among elements within the bigger picture.55 For example, most physical activity interventions have primarily relied on educational and information-based programmes targeting the individual with little consideration of the relational and social (eg, peers, role models, gatekeepers) and physical environments (eg, accessibility of parks, walkability, adequate lighting, safety) that have a major enabling or hindering influence on health behaviours.
Challenge 4: top-down implemented, one-size-fits-all interventions are ineffective
Health research frequently addresses questions and outcomes that are of limited relevance to healthcare practitioners, patients and other end-users, resulting in considerable research waste.56 Hence, most top-down, adult-driven, standardised interventions have had limited adoption and impact.24 Citizen participation in the form of youth-centred, evidence-informed co-creation of interventions tailored to local contexts helps to prevent misalignment of priorities between researchers and stakeholders on the one hand and misalignment of interventions with local contexts on the other. Engaging adolescents as critical agents of social and political change is necessary for building inclusive democratic societies, which can result in more effective and youth-friendly health promotion.57 58 Currently, adolescents increasingly participate in public health research; however, participation is generally limited to consultation and adolescents are rarely involved in the decision-making process, which is essential to becoming empowered and gain personal and collective agency to take action to improve their life situation.59–62 Several studies on youth participation in policy making have demonstrated that young people are sharp analysts of their settings and creative producers of ideas for planning, but authorities are reluctant to expand their top-down, expert-based mode of urban planning and health policy making to include young people.63 64
Here, we present the protocol of the YoPA project including the design, theoretical and evaluation framework.
Methods and analysis
Design
YoPA combines the flexible and adaptive participatory action research with a rigorous practical protocol and evaluation framework as well as scientific evidence with systematically produced local knowledge, that is, knowledge that is rooted in experience in a particular social context. Figure 1 presents the five phases of the YoPA approach, where engagement of stakeholders and evaluation continue throughout the project. We use a participatory,65 mixed-methods,66 comparative approach67 68 to comprehensively examine a broad range of evaluation questions such as whether, how and why interventions contribute to system change; how this evidence can be generalised and subsequently adapted to specific contexts, intended and unintended consequences of implemented interventions as well as potential working mechanisms and interactions with the local context. Using our novel Systems, User perspectives, Participatory co-creation process, Effects, Reach, Adoption, Implementation and Maintenance (SUPER-AIM) framework (table 1), we will evaluate both the participatory co-creation process as well as the process and outcomes of implementing holistic, systemic interventions in the four study sites: Aalborg in Denmark, Amsterdam in the Netherlands, Osogbo in Nigeria and Soweto in South Africa.
The YoPA SUPER-AIM evaluation framework
Youth-centred Participatory Action approach visualising the engagement of adolescent researchers, community adolescents and adult stakeholders. IPT, initial programme theory.
Theories and paradigms
The central paradigm in YoPA is participatory action research: a collaborative, iterative, often open-ended and unpredictable approach, which prioritises the expertise of those experiencing a social issue and uses systematic research methodologies to generate new insights.65 In YoPA, we use the six building blocks for designing a participatory action research project proposed by Cornish et al65: (i) building relationships, (ii) establishing working practices, (iii) establishing a common understanding of the issue, (iv) observing, gathering and generating materials, (v) collaborative data analysis and (vi) planning and taking action. A key benefit of participatory action research is empowerment by enabling participants to have a voice and contribute to knowledge production.69 70 Empowerment theory is a conceptual framework for understanding the enhancement of positive youth development by engaging youth in developing confidence, skills and behavioural strategies to achieve self-identified goals.71 72 Empowerment includes three components: (1) intrapersonal, including beliefs regarding control and confidence; (2) interactional, including critical awareness of driving forces and understanding of the actions and resources needed for the desired change and (3) behavioural, referring to actions to make the desired changes.71 A second paradigm in YoPA is a systems-approach that considers the links, feedback loops and interactions among elements within the bigger picture.55 We start with studying and understanding the local context. Next, we aim to develop and implement interventions, which we consider as a complex of actions that favourably contribute to reshaping the system dynamics.14
The YoPA co-creation protocol
We will start with collaboratively developing one overall YoPA co-creation protocol together with the local researchers from all four study sites. The YoPA co-creation protocol aims at high-quality co-creation (i) based on state-of-the-art science-based and practice-based evidence and theory; (ii) tailored to the local context, including the local needs and preferences of adolescents; (iii) acceptable and feasible for local stakeholders responsible for implementation. This protocol ensures a systematic, evidence-based and theory-based application of co-creation leaving space for adaptation to each local context. The overall co-creation protocol will include building an infrastructure for continuous capacity building for adolescents, as well as local stakeholders to stimulate participatory thinking, active engagement, equal collaboration and training in research and other relevant skills. This protocol will describe how to apply youth-centred co-creation including recruitment and all methods for capacity building and peer research. We will organise training for local facilitators of the youth-centred co-creation process, as well as for key stakeholders to stimulate their active contribution to the co-creation process. Academic researchers bring in their state-of-the-art scientific knowledge and experience with developing evidence-based interventions while adolescent researchers bring in their lived experience. In YoPA, we aim to develop academic and adolescent researchers’ collective agency, by building their capacities for collaboration, peer-research and intervention development. Collaborating with other key stakeholders from multiple sectors in the system will gain a deeper understanding of the complex system and thereby contribute to more holistic and contextually relevant interventions.
Engaging local YoPA communities
We will engage four local co-creation communities, two communities in minority countries (Denmark and the Netherlands) and two in majority countries (Nigeria and South Africa). In each community, a dynamic group of 15–20 adolescents will be recruited to participate as co-researchers in local co-creation groups facilitated by an academic researcher. Recruitment will take place through diverse channels and settings including schools, local community centres, youth clubs, religious meeting places and other relevant settings where adolescents with diverse backgrounds meet. We will use a purposive sampling method tailored to each local context (eg, social media, flyers) in collaboration with local non-governmental organisations and other community stakeholders. By ensuring safe spaces, skilled facilitators and capacity building, adolescents in local co-creation groups will be encouraged to actively engage and contribute to the co-creation process. We will conduct stakeholder analyses to identify and recruit other key stakeholders (eg, existing community-based organisations and local authorities with a shared agenda), who will be invited to actively contribute to the co-creation process by joining meetings of the local co-creation groups. The co-creation process will take place during regular participatory meetings with adolescents facilitated by an academic researcher over the course of 3 years. To maximise chances of sustained commitment, we will collaborate with local community groups organised around health advocacy, sports, music or social activity. We will emphasise social inclusion by involving adolescents of different genders and backgrounds.
Mapping the local context
To ensure YoPA will address questions and outcomes that are most relevant to the local communities, thereby promoting uptake and sustainability of the interventions, we will start with mapping the local context by an audit and environmental scan of selected communities to identify local needs and priorities using various state-of-the-art participatory methods, for example, photovoice,73 community mapping74 and neighbourhood walks.75 To explore the local communities at multiple levels, that is, including linkages, relationships, feedback loops and interactions, we will use systems methods such as group model building76 and social network analysis.77 We will use Causal Loop Diagrams as a tool to explore the multiple, interacting feedback loops operating in the existing local system. Such Causal Loop Diagrams create a dynamic, holistic view of the existing system, including intended and unintended potential consequences, and the ways in which interventions in one setting, such as home or school, might be influenced by the interactions with other settings, such as macroeconomic and urban systems, for example, public space.14 78 In bringing together key stakeholders (locally, nationally or internationally) to understand the root causes of unhealthy movement behaviours, a systems approach enables each stakeholder to see where they fit within a bigger picture.17 To ensure results align with the perspectives of the wider community, emerging findings will be shared with community representatives for them to critically examine and contribute. For this step, we may use structured interview matrix79—a community-based research method that allows large groups (up to 40 participants) to discuss directions for future developments and priorities in an iterative, structured and transparent process—and multicriteria decision-making matrices,80 to weigh all collected data in a transparent way. Each local system map will include an agreed set of priorities for holistic, systemic interventions in each local community.
Selection, tailoring and implementing evidence-informed interventions
Based on the local system maps, the best matching evidence-based interventions will be selected from (i) local youth-led knowledge, (ii) ISPAH’s eight investments that work for physical activity; (iii) literature reviews conducted by the academic researchers and (iv) other relevant (local) literature and databases including evidence-based interventions. For each of the selected interventions, we will develop an intervention theory to help identify key working mechanisms, salient context conditions and relevant additional outcomes. The intervention theories will be grounded in existing evidence and empirically tested in the local contexts. The selected interventions will be aligned with local priorities and existing strategic plans where possible, based on the local system maps and meetings with key stakeholders, to obtain support and ensure feasibility, sustainability and resources for the implementation. Key considerations for our settings are safety and crime (especially for adolescent girls), limited infrastructure and resources and transport challenges.
Evaluate interventions using the SUPER-AIM framework
The YoPA evaluation will take a systems perspective, aiming to evaluate a range of outcomes, associated processes and their dynamic inter-relationships using interrupted time series methods as one of the strongest quasi-experimental research designs.81 Table 1 describes the specific outcomes, samples and proposed methods for each component of our SUPER-AIM framework. Together with the local co-creation communities, we will select and/or modify the most appropriate methods that allow the collection of quantitative and qualitative data at all system levels, including measures of the process and outcomes of the co-creation and implementation of interventions. Process data will be collected continuously from the start of the co-creation process. Outcome data will be collected before and 6 months after implementation of interventions as well 6–12 months later depending on the local situation. For the outcome evaluation, we aim to recruit 200–250 adolescents in each local community. Training of (adolescent) data collectors for collecting data in the four communities will follow the ‘train-the-trainer’ principle: one meeting will be organised to train the researchers responsible for data collection in their country, who will subsequently train local (adolescent) data collectors. As there is a lack of evidence on the application of youth-centred co-creation in vulnerable settings in both majority and minority countries, we aim to better understand the mechanisms underlying co-creation through personal and collective agency in each of the settings with the help of a realist evaluation.82 Next to evaluating the outcomes of interventions, realist evaluation aims to understand why and how specific outcomes were reached in each setting and thus contributes to building the theory base on why interventions work (or not), and for whom, in a range of settings. Collaborating and sharing experiences across the four co-creation sites through online meetings, exchanges and joint analyses may help to generalise findings.
Analyses
Data collected by adolescent-researchers throughout the co-creation process will be analysed using the best available and accessible techniques with options for facilitated co-researcher involvement. The selected methods should be engaging to the co-researchers, suited to answering their research questions and supported by a skilled academic researcher. Following data cleaning and data processing, we will analyse the outcomes of the implemented interventions, as well as the dynamics underlying these, combining and comparing data from the four study sites. We will conduct analyses of a combination of quantitative (eg, sensor-based behavioural data) as well as qualitative (eg, interviews and user-generated data) data.83 Quantitative data will be analysed using appropriate techniques (eg, multilevel modelling appropriate for individual-level data nested within communities). Qualitative data will be summarised and subsequently analysed using open and axial coding by two independent researchers. Intersectionality references the critical insight that race, class, gender, sexuality, ethnicity, nation, ability and age operate not as unitary, mutually exclusive entities, but as reciprocally constructing phenomena that in turn shape complex social and health inequalities.84 In both quantitative and qualitative analyses, we will apply different kinds of intersectional analyses including relevant categories such as gender, age, education and ethnicity.
In the social network analysis, we will focus on the relationships among relevant ‘actors’ when mapping the local setting including persons, organisations and locations to understand the inter-relations and impacts of factors at different levels—from individual-level factors to environments and policies. We will use this knowledge to identify leverage points for interventions. We will integrate realist evaluation82 in the process evaluation to better understand which mechanisms contributed to the observed outcomes, for example, how the achievement of individual and collective agency leads to empowerment, and under which conditions. Additionally, we will provide a tested and refined intervention theory on the application of youth-centred co-creation in vulnerable settings, focusing on social mechanisms potentially to be triggered (trust, reciprocity, neighbourhood solidarity, personal and collective agency, leadership) in a range of context conditions (typology of settings: socially cohesive long time residing migrant communities, less cohesive transient migrant communities, diverse communities, partially gentrified, etc). We will develop a plausible causal explanation, focusing also on counteracting or unintended consequences. These findings will be further synthesised into a refined intervention theory that can be used for future similar interventions and can be tested in other settings. To analyse the costs of implementation, we will use microcosting reflecting actual resource use and economic costs by collecting data on resources used and the unit costs of those resources following guidelines and checklists for conducting and reporting microcosting studies.85
Patient and public involvement
Involvement of youth and other relevant stakeholders is a key element of the YoPA project. Together with academic researchers and local stakeholders, adolescents will take a leading role in the co-creation process running over the course of 3 years (see also ‘Engaging local YoPA communities’ section). Recruitment of adolescents for the local co-creation communities started in October 2023 in Denmark and in January 2024 in all other countries. Data collection will continue until December 2026.
Ethics and dissemination
Ethical considerations are fundamental throughout the YoPA project. In YoPA, we will encourage an emphasis on inclusive practices, mutual respect, continuous dialogue and reflexivity, shared decision-making and collaborative action. Each adolescent participating in the youth-centred co-creation or any aspect of the evaluation, and where relevant also one of their parents, will sign informed consent before participating in the study, verifying that they understood the involvement and agree to data collection. We will develop attractive, age-adapted and easy-to-understand information (eg, brochures, videos) explaining the purpose of involvement, the nature of data collection, the potential burden (eg, time investment), the right to access their own data, how data will be processed and protected and how confidentiality will be maintained. Where possible, we will make datasets generated and/or analysed during the YoPA project available in the Open Science Framework repository. Not all data can be made public in order to protect participants’ confidentiality. Participation is entirely voluntary, and participants can choose to withdraw at any time without consequences. The Research Ethics committees of the four local institutions approved the protocol for the YoPA project: Amsterdam UMC Medical Ethical Committee, Netherlands (2023.0670), the Redeemer’s University, Nigeria (2023.060), the University of Southern Denmark Research Ethics Committee, Denmark (Case no 23/47839, REC ID 408), the Human Research Ethics Committee (Medical) at the University of the Witwatersrand, South-Africa (reference: M230721).
To enhance the communication, dissemination and impact of YoPA, we have developed a comprehensive plan (figure 2) that includes a well-defined strategy, clear objectives with measurable key results and various tools designed to amplify the project’s impact. Effective communication and (community) dialogue is crucial for raising public awareness about the importance of healthy movement behaviours in preventing NCDs and promoting youth-centred co-creation of intervention customization and implementation. This will enhance the visibility of the YoPA project among various stakeholders, for example, through the project website (https://www.yopa-project.eu/). Collaborative dissemination activities target scientific, stakeholder, policymaker and wider audiences aiming to promote youth-centred co-creation for healthy movement behaviours and NCD prevention tailored to local communities. YoPA is committed to continued project results through a sustainable dissemination and impact strategy. Additionally, we aim to build capacities among local partners and universities for ongoing local co-creation research and community collaboration. We will make all educational and training materials, practical protocols and successful local intervention examples available in the YoPA toolbox. The YoPA approach will be shared through a licensed train-the-trainer programme for effective dissemination through diverse channels. By actively engaging stakeholders in training sessions, we aim to promote the benefits of co-creation and inspire more effective action towards promoting health across society.
Communication, dissemination and impact plan of the YoPA project. NCD, non-communicable disease; SUPER-AIM, Systems, User perspectives, Participatory co-creation process, Effects, Reach, Adoption, Implementation and Maintenance.
Discussion
YoPA will contribute to health equity by specifically focussing on improving the social and physical environment of adolescents in vulnerable urban life situations. Evaluating the effectiveness of such socio-environmental interventions across heterogeneous local contexts, co-creation communities and interventions is challenging as these will result in different ‘intervention theories’ or scenarios, on how systems-oriented interventions are expected to work in their respective contexts. Describing and testing plausible mechanisms of how interventions are expected to work at multiple levels and for a range of actors (in nested systems), is important for strengthening robust causal inference but also for credibility towards policy and practice.86 Traditional designs and analysis methods are not appropriate for studying complex systems as they lack the ability to measure and understand contextual including socio-ecological effects as well as the dynamic properties of complex adaptive systems,77 including unintended effects on other parts of the system.87 Therefore, we introduce our novel SUPER-AIM framework, incorporating crucial data explaining if, how, why and in which settings the implemented interventions will favourably contribute to reshaping local systems.
A better understanding of how culture and structure impacts the co-creation process and interventions implemented in the four selected communities in YoPA benefits knowledge exchange between the different settings. Furthermore, YoPA goes beyond addressing a research gap in physical activity and health research in sub-Saharan Africa; it takes an approach to considering context in a robust and meaningful way that fully accounts for competing priorities in African settings.20 Currently, there is a lack of systematic and practical protocols guiding the application of co-creation for tailoring evidence-informed interventions to specific contexts, and subsequently evaluating them together with adolescents and other key stakeholders. To fill this gap, we will develop a YoPA toolbox, making all materials and training on the youth-centred co-creation for tailoring and implementation of evidence-informed interventions available through the YoPA website (yopa-project.eu), both during its development and its final form. Once results from the process, outcome and realist evaluations start to come in, more formalised guidelines for the use of the toolbox, as well as policy recommendations for the implementation of similar co-creation processes will be developed and become part of the toolbox, targeted at researchers, public health and urban planning practitioners, local authorities, policy makers, grassroots/community-based organisations and citizens.
Limitations of our study could be the lack of a controlled design and the challenge to instigate and measure sustainable system change as this cannot be externally directed, but occurs as a result of the self-organising interactions and relationships within the system. The complexity of the public health problem and context-specific approach prohibit a randomised controlled trial design. Instead, in YoPA we focus on identifying working mechanisms and detailed documentation using a mixed methods design.
By establishing an infrastructure for youth-centred co-creation including capacity building, mentoring and with active engagement of adolescent health advocates and leaders, YoPA aims to nurture sustainable implementation of adolescent-responsive preventive interventions tailored to the local context, improving their agency, 24-hour movement behaviours and well-being, with the purpose of halting the rise in NCDs and associated healthcare costs. We envision that our YoPA youth-centred co-creation approach will serve as a guide for participation of adolescents in vulnerable life situations in implementation of health promotion in Europe, Africa and globally.
Ethics statements
Patient consent for publication
References
Footnotes
Contributors MC has led the writing and editing of this paper, coordinates the overall YoPA project and is the project lead for YoPA in Amsterdam. LK contributed to the design of the YoPA project, commented on drafts and is co-project lead for YoPA in Amsterdam. ALO contributed to the design of the YoPA project, commented on drafts, leads the mapping of the local systems and is the project lead for YoPA in Osogbo. CD contributed to the design of the YoPA project, commented on drafts, leads the evaluation of YoPA and is the project lead for YoPA in Soweto. CSP and JS contributed to the design of the YoPA project, commented on drafts and are co-project leads for YoPA in Aalborg. ALP and MNS commented on drafts, and lead the YoPA communication, dissemination and impact strategy. SVB contributed to the design of the YoPA project, commented on drafts and leads the realist evaluation. TMA contributed to the design of the YoPA project, commented on drafts, leads the tailoring and implementing of co-created interventions and ethics and is co-project lead for YoPA in Amsterdam. All authors read and approved the final manuscript.
Funding This work was supported by the European Union’s Horizon Europe research and innovation programme under grant number 101095423.
Competing interests None declared.
Patient and public involvement Patients and/or the public were involved in the design, or conduct, or reporting, or dissemination plans of this research. Refer to the 'Methods' section for further details.
Provenance and peer review Not commissioned; peer reviewed for ethical and funding approval prior to submission.