Table 4

Quotes by patients referring to life with alopecia areata (Q2) and quotes by patients and dermatologists referring to patient pathways and healthcare disparities (Q3)

Quote numberQuoteParticipant
Q2.1“It started in 2015, a circular spot at the back of the head (…), I wanted to quit my job at the time and was afraid to tell my boss and I think that was the stress.”Patient, female, 30–39 years
Q2.2“With approaching winter (…) I already notice that the head hair is also thinner and not as good. (…) And in summer it grows again.”Patient, female, 40–49 years
Q2.3“I'm feeling fine with it so far, in the sense that I have accepted it.”Patient, male, 40–49 years
Q2.4“For me in my everyday life, this disease plays no role in this sense, (…) I am fine.”Patient, female, 20–29 years
Q2.5“What interests me now is whether I can influence it (…) by my actions, by my way of life, because although I have accepted it (…), I would like to understand it.”Patient, male, 40–49 years
Q3.1“I would say if I didn't need the prescription [for the wig], I wouldn't go there at all.”Patient, female, 50–59 years
Q3.2“I would say that pharmacists are not really educated about AA. I don't think they would suggest anything to you on their own.”Patient, female, 20–29 years
Q3.3“I started the therapy and that simply helps to focus on this stress management and partly also these fears that go along with it, to learn strategies.”Patient, female, 30–39 years
Q3.4“(…) to see the psychosocial side of this disease, that is not just your hair falling out, but what it does to the people and that would, I would just wish that (…) that is also addressed and is also dealt with sensitively with those affected, that they feel taken seriously.”Patient, female, 20–29 years
Q3.5“He was very empathetic. He explained well that you really can't do much.”Patient, female, 20–29 years
Q3.6“The dermatologists were very overwhelmed here in the area.”Patient, female, 20–29 years
Q3.7“If this attempt has brought no success over weeks, months, then the dermatologist in private practice usually stops the treatment. (…) And that is actually when the normal topical steroid has failed, that the patient is then referred to us [a university]. hospital.”Dermatologist, male, 40–49 years