Quotes by patients referring to life with alopecia areata (Q2) and quotes by patients and dermatologists referring to patient pathways and healthcare disparities (Q3)
Quote number | Quote | Participant |
Q2.1 | “It started in 2015, a circular spot at the back of the head (…), I wanted to quit my job at the time and was afraid to tell my boss and I think that was the stress.” | Patient, female, 30–39 years |
Q2.2 | “With approaching winter (…) I already notice that the head hair is also thinner and not as good. (…) And in summer it grows again.” | Patient, female, 40–49 years |
Q2.3 | “I'm feeling fine with it so far, in the sense that I have accepted it.” | Patient, male, 40–49 years |
Q2.4 | “For me in my everyday life, this disease plays no role in this sense, (…) I am fine.” | Patient, female, 20–29 years |
Q2.5 | “What interests me now is whether I can influence it (…) by my actions, by my way of life, because although I have accepted it (…), I would like to understand it.” | Patient, male, 40–49 years |
Q3.1 | “I would say if I didn't need the prescription [for the wig], I wouldn't go there at all.” | Patient, female, 50–59 years |
Q3.2 | “I would say that pharmacists are not really educated about AA. I don't think they would suggest anything to you on their own.” | Patient, female, 20–29 years |
Q3.3 | “I started the therapy and that simply helps to focus on this stress management and partly also these fears that go along with it, to learn strategies.” | Patient, female, 30–39 years |
Q3.4 | “(…) to see the psychosocial side of this disease, that is not just your hair falling out, but what it does to the people and that would, I would just wish that (…) that is also addressed and is also dealt with sensitively with those affected, that they feel taken seriously.” | Patient, female, 20–29 years |
Q3.5 | “He was very empathetic. He explained well that you really can't do much.” | Patient, female, 20–29 years |
Q3.6 | “The dermatologists were very overwhelmed here in the area.” | Patient, female, 20–29 years |
Q3.7 | “If this attempt has brought no success over weeks, months, then the dermatologist in private practice usually stops the treatment. (…) And that is actually when the normal topical steroid has failed, that the patient is then referred to us [a university]. hospital.” | Dermatologist, male, 40–49 years |