Quotes by patients and dermatologists referring to therapy options
| Quote number | Quote | Participant |
| Q1.1 | “No, except for taking zinc supplements, I don’t do anything anymore. I let it [the hair] come and go.” | Patient, female, 30–39 years |
| Q1.2 | “I would have had to go to (city 8), I think every week or so (…)and that, um, I would not have managed in terms of time, to be honest. I then also heard, as soon as the treatment is finished, the hair will fall out again.” | Patient, female, 50–59 years |
| Q1.3 | “The wig I got quite early, without the wig I would feel very stigmatised, because I have neither the strength nor the self-confidence to walk around without hair on my head.” | Patient, female, 30–39 years |
| Q1.4 | “That worked well. I was symptom-free for a relatively long time. My hair stopped falling out.(…)Then it abruptly stopped working.” | Patient, female, 20–29 years |
| Q1.5 | “So it was always said [by the dermatologist]: change of medication. Let’s look for something new. I didn't have much say in the matter.” | Patient, female, 20–29 years |
| Q1.6 | “I would have liked to have the possibilities, treatment options in more detail, in an overview,(…) but instead we get something different [different information] from every dermatologist” | Patient, male, 40–49 years |
| Q1.7 | “If the patient has a high level of suffering, I would send him to the university hospital, with the idea of getting into a study, because there is currently a lot happening. In our practice, we don't do too much, I have to say.” | Dermatologist, female, 30–39 years |
| Q1.8 | “And with baricitinib, regarding the experience so far, you really have a great therapy option, but with the restriction that it is not reimbursed.” | Dermatologist, male, 50–59 years |
| Q1.9 | “Sometimes the wig is so well made that you don't even see it. (…) And they [the patients] are really happy. With the wig, you have to say, a new phase begins for them.” | Dermatologist, female, 40–49 years |
| Q1.10 | “But these are patients who have been to other places [physicians] and who are simply hoping that you will prescribe them a systemic therapy that you may not be able to get from other doctors. (…) I used to put a lot of work into asking the health insurance companies to cover it. (…) The answer is always: Yes, you can prescribe it, but it is a lifestyle medication” | Dermatologist, female, 40–49 years |
| Q1.11 | “But for the patient, I think it’s an agony. It [the DCP therapy] is very tedious and almost always leads to a relapse when they stop taking it.” | Dermatologist, male, 60–69 years |
| Q1.12 | “Of course, we have a number of patients where there is a spontaneous remission, who do not come back into the practice.” | Dermatologist, female, 30–39 years |
| Q1.13 | “What is important, patients must be educated well that this disease runs in relapses.” This means that once we have brought on a ‘cure’, we cannot guarantee that a relapse will not occur at some point (…)” | Dermatologist, male, 40–49 years |
| Q1.14 | “But they are actually/do what we recommend. (…) I always explain to them that theoretically you can also just wait. (…) But they are very willing to undergo therapy” | Dermatologist, female, 40–49 years |