Differences between health service needs (part A) and gets (part B) according to the Needs and Provision Complexity Scale (n=30)
| Needs-Gets | Unmet needs† | |
| Median (IQR)/(range) | n (%) | |
| Total NPCS (score 0–50) | 4.0 (4.3)/(0–16)** | 29/30 (97%) |
| Healthcare (score 0–6) | 0.5 (1)/(-1–2)* | 15/30 (50%) |
| Personal care (score 0–10) | 0.0 (2)/(-1–5)* | 14/30 (47%) |
| Rehabilitation (score 0–9) | 2.0 (2)/(0–8)** | 25/30 (83%) |
| Social and family support (score 0–13) | 1.0 (1.3)/(-1–4)** | 19/30 (63%) |
| Environment (score 0–12) | 0.0 (1)/(0–4)* | 12/30 (40%) |
Needs indicates that adults with BBS need this health service.
Gets indicate that adults receive this health service (provision).
Unmet needs are the difference between Needs and Gets.
*p<0.01, **p<0.001 with the Wilcoxon signed rank test.
†Proportion of participants with a higher score on the NPCS Needs than the NPCS Gets.