Table 2

Study instruments and data collection time points

Outcome/variableStudy measureBaseline10 days
post-HSCT
60 days
post-HSCT
100 days
post-HSCT
Quality of lifeCareGiver Oncology Quality of Life questionnaireXXXX
Caregiving burdenCaregiver Reaction AssessmentXXXX
Anxiety symptomsHospital Anxiety and Depression ScaleXXXX
Depression symptomsHospital Anxiety and Depression ScaleXXXX
Symptoms of post-traumatic stressPost-Traumatic Stress Disorder ChecklistXXXX
Self-efficacyCancer Self-Efficacy Scale-transplantXXXX
Coping skillsMeasure of Current Status Part AXXXX
Usability of the BMT-CARE appSystem Usability Scale*X
Use of supportive care servicesSelf-reported utilisation of mental health servicesX
  • *This measure is administered only to participants randomised to the intervention arm.

  • HSCT, haematopoietic stem cell transplantation.