Factors/categories and ranked priorities
Factors/categories (n, country) | Participant (P) ranking | Final group consensus | ||
FG1 (n=3, UK) | P1 | P2 | P3 | |
Local/national guidelines | 6 | 1 | 1 | 1 |
Patient characteristics | 1 | 2 | 2 | 2 |
Disease prognosis/stage of disease | 3 | 4 | 3 | 3 |
Response to treatment | 2 | 3 | 4 | 4 |
Interpersonal relationships | 4 | 5 | 5 | 5 |
Access to treatment | 5 | 6 | 6 | 6 |
FG2 (n=3, UK) | P1 | P2 | P3 | |
External factors | 1 | 1 | 3 | 1 |
Patient characteristics | 2 | 2 | 1 | 2 |
HCP experience | 3 | 4 | 2 | 3 |
Side effects | 4 | 3 | 4 | 4 |
FG3 (n=2, UK) | P1 | P2 | ||
Patient characteristics | 1 | 1 | 1 | |
HCP experience | 2 | 2 | 2 | |
Practicalities | 3 | 3 | 3 | |
FG4 (n=3, UK, IRE, FR) | P1 | P2 | P3 | |
Medical concern* | 1 | 1 | † | 1 |
Age | 3 | 5 | 1 | 2 |
Side effects | 4 | 2 | † | 3 |
Lifestyle | 2 | † | 5 | 4 |
Preference | 5 | 3 | † | 5 |
Comorbidity | † | † | 4 | 6 |
Motor ability | † | † | 2‡ | Not prioritised |
Cognition | † | 4§ | 3‡ | Not prioritised |
FG5 (n=2, NL, SE) | P1 | P2 | ||
Symptoms | 1 | 1 | 1 | |
Efficacy and safety | 3 | 2 | 2 | |
Side effects | 4 | 3 | 3 | |
Patient characteristics | 2 | 4 | 4 | |
Preference | 5 | 5 | 5 | |
FG6 (n=3, UK, IT) | P1 | P2 | P3 | |
Patient characteristics | 1 | 1 | 1 | 1 |
Quality of life | 2 | 2 | 2 | 2 |
Social setting | 3 | 3 | 3 | 3 |
Drug factors | 5 | 4 | 4 | 4 |
Prescriber experience/culture | 4 | 5 | 5 | 5 |
FG7 (n=2, IT, CH) | P1 | P2 | ||
Clinical factors | 1 | 1 | 1 | |
Shared decision-making | 3 | 3 | 2 | |
Guidelines | 2 | 4 | 3 | |
Treatment needs | 4 | 2 | 4 | |
Cost | 5 | † | 5¶ | |
Social support | † | 5 | 5¶ |
*Participants in this group had differing opinions about whether patients’ cognitive ability and degree of motor symptoms should be included within this category or ranked separately (see footnotes ‡ and §).
†Participant did not rank this factor.
‡Participant ranked both ‘Motor’ and ‘Cognition’ separately in positions 2 and 3, respectively.
§Participant ranked ‘Cognition’ separately in position 4.
¶Participants could not reach a consensus on which factor should be ranked in position 5. They decided that it was country-dependent so recommended different factors for CH and for ITLY.
AT, Austria; CH, Switzerland; FG, focus group; FR, France; HCP, healthcare professional; IRE, Ireland; NL, Netherlands; P, participant; SE, Sweden; IT, Italy; UK, United Kingdom.