Survey instruments
Domain | Instrument or source | Number of questions | Time points | Constituent |
Demographic characteristics | Study-specific questionnaire | 8 | Baseline and 6 months | Patient |
Social determinants of health | NCCN Distress Thermometer19 | 1 | ||
Unmet needs | Supportive Care Needs Survey (SCNS-SF34)20 | 22 | ||
Patient-provider communication | Patient-Centered Communication Scale21 | 7 | ||
Clinical trials knowledge | Clinical Trials Knowledge22 | 7 | ||
Patient satisfaction | Satisfaction Measure23 | 17 | ||
Patient activation | Patient Activation Measure24 | 13 | ||
Financial toxicity | FACIT-COST26 | 11 | ||
Quality of life | PROMIS Global Short Form27 | 10 | ||
Volunteer satisfaction | Volunteer Satisfaction Index18 | 30 | 1 year | Volunteer |
FACIT-COST, Functional Assessment of Chronic Illness Therapy Measure of Financial Toxicity; NCCN, National Comprehensive Cancer Network; PROMIS, Patient-Reported Outcomes Measurement Information System.