Outcomes and instruments for family participants
Domain | Outcome | Scale |
Subjective outcome (PROM) | Quality of life | Recovering Quality of Life 10-item version (ReQoL-10) |
Well-being | Single-item well-being measure | |
Burden of family care | 8-item Zarit Burden Index (ZBI-8) | |
Family relationships | Family Questionnaire (FQ) | |
Social condition | Living status and Economic condition | Original questions “How have you felt about your finances during the past year?” “What is your primary source of income?” |
Service | Frequency of visiting services (per month) | Medical or service records |
PROM, patient-reported outcome measures.