Table 2

Care coordination models for childhood cancer survivors’ transition and LTFU included in this review

ModelSettingsStructure of the modelMain care tasksEvaluation
  • The TACTIC Clinic Model

Long term follow-up through to young adulthoodMultidisciplinary team (general internist, clinical health psychologist, an oncology survivorship nurse educator) and clinic nurse coordinator
  • History and physical exams

  • Psychological assessment

  • Appropriate lab work/tests

  • Preventive care/recommendations

  • Cancer-based risk assessment

  • Specialty and primary care referrals (if needed)

  • Educational and informational resources

Patients’ response rate and Clinical referrals
  • The Innovative Clinic Model

Transition from hospital to medical centreNurse navigator and a primary care physician in the adult setting and paediatric survivorship workgroup (paediatric and adult oncologists, internal medicine physicians, specialists, administrators, psychosocial and supportive care providers and organisations, and clinical researchers)
  • Consultative survivorship care/both primary and survivorship care

  • Providing educational materials

  • Information delivery through mass media

Patient-reported outcomes (access to services, satisfaction with care, patient distress and patient access to treatment) and clinical outcomes (referral, patients’ adherence, length of waiting time)
  • The St. Jude Model of Long-Term Survivor Care (ACT Clinic intervention)

Transition from paediatric oncology to community providersNurse practitioner and social worker and clinic nurse and Subspecialty provider and Physician
  • Review of comprehensive health questionnaire

  • Psychosocial assessment

  • Education about self-examination

  • Consultant assessment

  • Comprehensive risk-based clinical assessment

  • Health counselling

Not report
  • The Multidisciplinary Model of Care

Long-term follow-upSubspecialists (oncology, endocrinology, cardiology, pulmonology, psychology, cardiology, nutrition) and nursing roles (nurse coordinator, outpatient clinic nurse, advanced practice nurse, research nurse)
  • Late effects visit: treatment history physical exam risk-based screening and counselling

  • Specialist visits: oncology, endocrinology, cardiology, pulmonology, psychology, cardiology, nutrition

Patient (access to services) and Healthcare provider (efficiency and effectiveness of services) and Institution (referrals, patients’ satisfaction)
  • The Long-Term Follow-Up Programme

Long-term follow-upMultidisciplinary team: physician, nurse coordinator, medical social worker and other subspecialists
  • Services to address the psychological implications of cancer for survivors and their families

  • Educational support through school transition programmes

  • Personnel to assist with insurance and employment challenges

  • A plan to facilitate the transition of grown childhood cancer survivors into adult systems of care

Not report
  • The Personalised Cancer Survivorship Care Model

Regular long-term follow-upSurvivorship clinic/coordination and medical expert team and psychosocial expert team and consultants
  • Transition to the survivor care clinic

  • Two-way sharing of information

  • Clinic visit for screening, health promotion

  • Disease prevention

  • Risk stratification

  • Multidisciplinary shared care

Patient (health outcomes, satisfaction) and clinic (cost-effectiveness)
  • The Re-Engage Model

Long-term follow-upA distance-delivered live intervention: including a clinical nurse consultant, a specially constituted MDT (including paediatric and adult oncologists, nurse, GP, psychologist, social worker)
  • Online/telehealth consultation

  • A personalised follow-up plan

Survivors’ health-related self-efficacy, health behaviours, information needs, satisfaction with care and emotional well-being
  • GP, general practitioner; MDT, multidisciplinary team.