Table 2

Parent characteristics

Parent characteristics (n=19)
Hospital* where pregnancy was managedIntervention sites (sites that perform selective termination or fetoscopic laser treatment for sFGR) (n=8)
Local/referral sites (sites who do not perform selective termination or fetoscopic laser treatment for sFGR and refer to the above hospital sites) (n=5)
Gestation when sFGR diagnosed16, 18, 20 and 22 weeks but noted (not diagnosed) in some as early as 12 weeks
Pregnancy management route takenExpectant management (n=19)
Other management options offeredSelective termination (n=5, 3 families)
Laser treatment (n=2, one initially for Twin-to-Twin Transfusion Syndrome)
Pregnancy outcomeNot known (n=8, 6 families-site parents, so pregnant at the time of the interview)
Both twins lived (n=8, 6 families)
Twin born with neurodevelopmental impairment (n=1)
Both twins died (n=3, 2 families)
Country of residenceEngland (n=18)
Scotland (n=1)
Ethnic groupAsian (n=2)
Black Caribbean (n=1)
Mixed Other (n=1)
White British (n=15)
  • *Some mothers were cared for at multiple hospitals.

  • sFGR, selective fetal growth restriction.