Table 4

Expert views and recommendations on PA in people with head and neck cancer*

Addressing symptoms and barriers
  • Address PA barriers and give patients advice on how to overcome them.40 41 48 49

  • Physical34 46 52 and psychological50 impairments (eg, distress, anxiety, depression) need to be adequately addressed.

  • Symptoms or risk factors associated with low PA levels need to be covered.34 35

  • If necessary, rehabilitation should be recommended;34 ongoing support should be offered by specialist rehabilitation teams.48

  • Referrals to specialists should be made for individuals with more needs/worries about exercise.52

Providing information and education
  • Give education and training for HCP and patients to be aware of benefits of exercise.40 47 49

  • Patient education about symptom management should be offered to enhance self-efficacy and PA35; access to resources relevant for recovery should be provided.47

  • Focus should be put on personal goals and knowledge gaps about benefits and perceived barriers.43

  • Information on exercise should ideally be given soon after time of diagnosis.40

  • Blended care or e-health apps can be helpful in providing patient-tailored information on activity level, personal goals and monitoring individual progress.50

Addressing behaviour, attitude and intention
  • Health behaviour change interventions and psychological strength building should be offered to increase patient’s self-efficacy and engagement.46 48

  • Assistance by medical professionals or exercise specialist should be given to find a suitable type of PA.36 46

  • Supporting the empowerment process is important.39

  • Some patients will need professional guidance to help prioritise PA.52

  • Patient education about exercise benefits should be given to increase confidence, competence, uptake and adherence.49

  • Attention should be put on dealing with the lack of perceived ability to participate; an expert should guide them.36

  • HCPs should improve awareness about actual PA levels of individuals.52

  • Provide access to HCPs at the end of treatment to guide lifestyle decisions.48

  • Potential intention-behaviour gap needs to be considered.39

  • Intention might need to be targeted; pedometers or accelerometers might improve awareness of actual PA levels.52

  • The health behaviour history needs to be included in the survivorship care plan.46

Support provided within the healthcare system
  • Exercise and PA interventions should be integrated within the oncological care pathway as usual care.40 47 50

  • There should be a culture shift towards more PA; necessary prescriptions should be provided.47 48

  • Surgeons should advise and encourage exercise.47 49

  • All members of the healthcare team should motivate and facilitate exercise as part of recovery.49

  • Exercise specialists should be involved in the care pathway.47

  • Exercise and PA interventions should start as early as possible.50

Suggestions about PA intervention deliveryType of intervention:
  • Programmes and interventions should be tailored to each patient’s abilities and preferences.40 43 47 49

  • Collaborative, flexible, culturally sensitive and individualised approaches are needed.49

  • Exercise interventions should be tailored and personalised with regard to goal setting, training type, intensity, setting and timing and should be incorporated in ADLs.50

  • A flexible training programme should be offered with check-in policy after several missed classes at the end stage of treatment.51

  • Scheduling of exercise sessions need to be flexible around treatment appointments.50


Location:
  • When it is safe: home-based, moderate intensity exercise should be included.36

  • Training should be at a location to the patients' convenience.50


Supervision:
  • Supervision: supervision before treatment and remote supervision for home-based training during and shortly after chemoradiotherapy.50

  • It is assumed that attendance rate and effects are lower for unsupervised training interventions.42

  • Patients should be monitored before and during exercise.43

  • The physiotherapist can act as an important facilitator for motivation, mental support and increasing discipline to exercise.50


Others:
  • Exercise/PA should be combined with intensive nutritional support and monitoring.43

  • Resources need to be built to support exercise into cancer survivorship and in community-based settings.47

  • Need for funding for exercise programmes (outside of study context).47

  • *All views and recommendations are extracted from the Discussion section of the publications with the exception of Daun et al47 who used interviews with HCPs.

  • ADL, activities of daily living; HCPs, healthcare professionals; PA, physical activity.