Characteristics of included studies (n=66)
| Primary studies (n=45) (n (%)) | Secondary studies (n=21) (n (%)) | |
| Year of publication | ||
| 2015–2017 | 13 (29) | 7 (33) |
| 2018–2020 | 18 (40) | 7 (33) |
| 2021–2022 | 14 (31) | 7 (33) |
| Country of publication | ||
| Asia | 1 (2) | 3 (14) |
| Australia/South Pacific | 4 (9) | 2 (10) |
| Europe | 14 (31) | 7 (33) |
| North Africa and Middle East | 4 (9) | 1 (5) |
| North America | 21 (47) | 8 (38) |
| South America | 1 (2) | -- |
| Study design | ||
| Case report/series | 1 (2) | -- |
| Observational (cross-sectional, cohort) | 30 (67) | -- |
| Qualitative study | 5 (11) | -- |
| Mixed methods | 3 (7) | -- |
| Interventional (pre/post, controlled trial) | 5 (11) | -- |
| Cost/cost-effectiveness | 1 (2) | -- |
| Systematic review | -- | 11 (53) |
| Scoping/umbrella review | -- | 4 (19) |
| Integrative review | -- | 3 (14) |
| Environmental scan | -- | 3 (14) |
| Funding source | ||
| Private | 1 (2) | 2 (10) |
| Public | 22 (49) | 8 (38) |
| Mixed | 2 (5) | -- |
| None | 14 (31) | 9 (42) |
| Not Reported | 6 (13) | 2 (10) |
| Number of participants | ||
| Patients/caregivers (median (IQR)) | 115 (42–265) | -- |
| Healthcare providers (median (IQR)) | 18 (13–22) | -- |
| Participant age | ||
| Patients/caregivers (median (IQR)) | 55.5 (47–63) | -- |
| Healthcare providers (range) | 22–76 | -- |
| Participant gender (%) | ||
| Patients/caregivers (median) | Female: 53.7 Male: 50 | -- |
| Healthcare providers (median) | Female: 61.3 Male: 38.7 | -- |
| Review methods | ||
| Number of included publications(median (IQR)) | -- | 17 (12–22) |
| Reported inclusion/exclusion criteria | -- | 16 (76) |
| Limited search by language | -- | 10 (48) |
| Limited search by date | -- | 5 (24) |
| Age/publication date of included studies | ||
| 0–5 years prior | -- | 3 (14) |
| 6–10 years prior | -- | 4 (19) |
| 11+ years prior | -- | 9 (43) |
| Not reported | -- | 5 (24) |