Table 5

Treatment experience overview, n=1094 cases

TypeTreatmentEver triedAmong those who ever tried….
Has at least partially alleviated symptomsEver made symptoms worse
AntimicrobialAntibiotics959 (88%)812 (85%)174 (18%)
Antifungals336 (31%)205 (61%)53 (16%)
Antivirals280 (26%)156 (56%)25 (9%)
ImmunomodulatoryOral non-steroidal anti-inflammatory drugs869 (79%)673 (77%)23 (3%)
Corticosteroids503 (46%)346 (69%)176 (35%)
Intravenous Immunoglobulin (IVIG)275 (25%)224 (81%)80 (29%)
Monoclonal antibody therapy (eg, rituximab)46 (4%)40 (87%)11 (24%)
Plasmapheresis35 (3%)30 (86%)5 (14%)
Subcutaneous Immunoglobulin (SCIg)22 (2%)9 (41%)9 (41%)
PsychotherapyPsychotropic medications (including selective serotonin reuptake inhibitors)519 (47%)275 (53%)251 (48%)
Cognitive–behavioural therapy491 (45%)218 (44%)80 (16%)
OtherSupplements886 (81%)566 (64%)172 (19%)
‘Tincture of time’ (wait it out)704 (64%)134 (19%)455 (65%)
Diet modification681 (62%)431 (63%)40 (6%)
Antihistamines (H1 and H2 blockers)631 (58%)389 (62%)72 (11%)
Homeopathy463 (42%)302 (65%)82 (18%)
Tonsillectomy340 (31%)194 (57%)37 (11%)