Table 1

Overview of the content of the sessions in both intervention groups

Overview of the content of the sessions
Perceived injustice-targeted PNE + MISession (duration)Biomedically-focused pain education
  • PNE adapted to BCSs discussing:

    • Pain as a fire alarm

    • Characteristics of acute versus chronic pain

    • How does acute pain arise in the nervous system?

    • How does pain become chronic?

    • Explaining the importance of long-term instead of short-term treatment options

  • Introduction of perceived injustice as a possible sustaining factor for pain and central nervous system sensitisation

  • Introduction to the logbook + change talk questions to prepare at home:

    • ‘What would you like to see different in your current situation?’

    • ‘Why do you think you need to change?’

    • ‘What will happen if you don't change?’

    • ‘What will have changed when you complete this treatment programme?’

    • ‘What would be the benefits of changing the way you deal with the pain?’

    • ‘What would your life be like in 3 years if you changed your way of dealing with the pain?’

    • ‘Why do you think others are concerned about your pain experience?’

Online session (1 hour)
GraphicGraphic
  • Differences between the characteristics of nociceptive pain, neuropathic pain and central sensitisation

    • Pain as a fire alarm

    • Characteristics of acute versus chronic pain

    • Oncological causes of pain after breast cancer: (1) cancer itself/metastases from it resulting in nerve pain, bone pain or oncological ulcer or (2) the cancer treatment (radiotherapy, surgery/operation, chemotherapy, hormone therapy and general consequences of cancer treatment)

  • Introduction to the logbook + questions to prepare at home:

    • ‘Which symptoms do you recognise in yourself per treatment that we have discussed?’

    • ‘Do you have any other symptoms that cause you pain?’

    • ‘How did you feel about pain before the online session?’

    • ‘What has changed about the way you look at your pain after watching the online session?’

  • Summary of the online PNE session

Information leaflet
Graphic
  • Summary of the online biomedically-focused pain education session

  • Completing the anamnesis in addition to the biopsychosocial baseline assessments

  • Discussing the online PNE (short recapitulation) and information leaflet to define the behavioural stage of change of the participant

  • Using MI based on the phase of behavioural change

  • Defining and discussing sustaining factors for pain such as perceived injustice, anger, (pain) acceptance and frustrations

  • Reviewing the logbook

1st one-to-one session
(45 min)
Graphic
  • Completing the anamnesis in addition to the biomedical baseline assessments

  • Discussing responses to the online education and information leaflet

  • Discussing the relationship between the treatment, symptoms and limitations in daily life

  • Types of pain medication based on the WHO classification and side effects

  • Reviewing the logbook

  • Continuing motivational interviewing based on the phase of behavioural change

  • Defining life goals and restarting valued occupations by improving the predefined sustaining factors for pain and central sensitisation

  • Reviewing the logbook

2nd one-to-one session (45 min)
Graphic
  • Discussing other treatment possibilities instead of pain medication

  • Defining goals to overcome the tissue damage to improve symptoms and limitations in daily life

  • Reviewing the logbook

  • Further defining life goals and restarting valued occupations

  • Supporting self-management based on motivational interviewing techniques in the planning phase

  • Reviewing the logbook

3rd one-to-one session
(45 min)
Graphic
  • Supporting self-management, ‘What can you do yourself?’

  • Reviewing the logbook

  • BCSs, breast cancer survivors; MI, motivational interviewing; min, minutes; PNE, pain neuroscience education; WHO, World Health Organization.