Table 1

Descriptive statistics on user-level data

Variable at the user level2017/20182018/20192019/2020
MeanSDMeanSDMeanSD
Outcome
 Care-related quality of life0.8240.1910.8230.1910.8240.194
Gender
 Male user (ref)41.9%0.49342.3%0.49442.7%0.495
 Female user58.1%0.49357.7%0.49457.3%0.495
Age
 User aged between 18 and 64 years old (ref)42.9%0.49543.2%0.49543.9%0.496
 User aged 65 or older57.1%0.49556.8%0.49556.1%0.496
Ethnicity
 User of white ethnicity (ref)90.1%0.29989.6%0.30688.6%0.317
 User of non-white ethnicity8.2%0.2758.5%0.2798.5%0.280
 User who did not state ethnicity1.7%0.1281.9%0.1372.8%0.166
Language
 User whose questionnaire was in English (ref)99.87%0.03699.89%0.03399.89%0.033
 User whose questionnaire was in non-English European languages0.02%0.0140.02%0.0140.03%0.016
 User whose questionnaire was in South Asian languages0.06%0.0250.09%0.0290.07%0.027
 User whose questionnaire was in Middle Eastern languages0.04%0.0210.00%0.0060.01%0.012
Primary support reason
 User who received physical support (ref)54.4%0.49853.9%0.49852.0%0.500
 User who received sensory support1.6%0.1241.5%0.1211.5%0.123
 User who received support with memory and cognition5.2%0.2215.0%0.2175.4%0.225
 User who received learning disability support28.5%0.45228.6%0.45230.5%0.460
 User who received mental health support8.2%0.2748.6%0.2808.4%0.278
 User who received social support2.2%0.1452.4%0.1532.2%0.146
Help with questionnaire
 User who did not receive help with questionnaire18.1%0.38518.3%0.38718.7%0.390
 User whose questionnaire was read by someone else49.9%0.50049.9%0.50049.6%0.500
 User whose questionnaire was translated by someone else24.2%0.42823.8%0.42625.0%0.433
 User whose questionnaire was only filled in by someone else40.7%0.49139.0%0.48839.0%0.488
 User whose questionnaire was talked through with someone else29.3%0.45529.8%0.45730.0%0.458
 User whose questionnaire was answered without asking by someone else8.9%0.2859.4%0.2918.8%0.284
Questionnaire version
 User who received a standard questionnaire (ref)71.7%0.45172.0%0.44969.7%0.459
 User who received an easy-read questionnaire28.3%0.45128.0%0.44930.3%0.459
Observations52 60255 57050 441
  • Means are estimated using the survey weight, and their SEs are obtained by taking into account survey stratification and clustering within local authorities.

  • ref, reference category; SE, SEs of the mean estimate.