Table 1

Schedule of enrolments, tests and assessments

TimepointD0 diagnosis2–6 weeks3 months6 months
Enrolment—phase 1

  • Eligibility screen

X

  • Consent for quantitative study

X
Enrolment—phase 2

  • Eligibility screen

Graphic

  • Consent for qualitative interview

Graphic
Test

  • Carer characteristics

X

  • Patient characteristics

X

  • Caregiver reaction assessment (CRA)

XXX

  • Supportive Care Needs Survey (SCNS-P&C45)

XXX

  • Quality of life (SF12_v2)

XXX

  • Semistructured interview

Graphic
Assessments

  • Carer characteristics: age, sex, relationship to patient, comorbidities

X

  • Patient characteristics: age, sex, disease profile, management, vital status

XXX

  • Impact assessment

XXX

  • Unmet needs assessment

XXX

  • Mental and physical QoL score

XXX

  • Experiences of caregiving

Graphic

  • QoL, quality-of-life.