Demographic description of survey participants
| Ethnicity | |
| Black- Caribbean | 22 |
| Black African | 20 |
| Indian | 2 |
| Any other ethnic/mixed | 4 |
| Any other (Arab) | 1 |
| Any other | 1 |
| Missing | 1 |
| Gender | |
| Female | 39 |
| Male | 11 |
| Other | 1 |
| Employed | |
| Yes | 26 |
| No | 25 |
| SCD variant | |
| HbSS | 34 |
| HbSC | 9 |
| HbS beta thal | 5 |
| Sickle cell carrier | 2 |
| Unknown (carer) | 1 |
| Caring for child/ren with SCD | |
| No | 37 |
| Yes | 14 |
| Age range (years) | |
| 1–17 | 3 |
| 18–29 | 17 |
| 30–39 | 16 |
| 40–49 | 9 |
| 50–59 | 4 |
| 60–69 | 2 |
SCD, sickle cell disorder.