Table 4

Top causes of death in children and young people with and without intellectual disabilities (individual ICD-10 codes)

OrderUnderlying causes of deathsAll-contributing factors in deaths
Intellectual disabilities (n)Without intellectual disabilities (n)Intellectual disabilities (n)Without intellectual disabilities (n)
1Cerebral palsy unspecified (50)Intentional self-harm by strangulation and suffocation (90)Cerebral palsy unspecified (76)Intentional self-harm by strangulation and suffocation (90)
2Epilepsy unspecified (10)Unknown cause of mortality (59)Epilepsy unspecified (60)Asphyxiation (90)
3Unknown cause of mortality (8)Accidental poisoning by and exposure to narcotics and psychodysleptics (45)Pneumonitis due to inhalation of food and vomit (39)Unknown cause of mortality (62)
4Neuronal ceroid lipofuscinosis (6)Accidental poisoning by and exposure to antiepileptic, sedative, hypnotic, antiparkinsonian and psychotropic drugs (15)Respiratory failure unspecified (28)Accidental poisoning by and exposure to narcotics and psychodysleptics (37)
5Other cerebral palsy (5)Car driver injured in a collision with car, pick-up truck or van (11)Pneumonia unspecified organism (27)Unspecified injury to face and head (29)
6*Bacterial infection unspecified (<5)Car driver injured in a collision with fixed or stationary object (11)Sepsis unspecified organ (18)Other psychoactive substance dependence (18)
7*Mucopolysaccharidosis type II (<5)Epilepsy unspecified (11)Bronchopneumonia unspecified organism (10)Unspecified multiple injuries (18)
8*Other generalised epilepsy and epileptic syndromes not intractable with status epilepticus (<5)Malignant neoplasm of the brain unspecified (10)Acute lower respiratory tract infection unspecified (8)Accidental poisoning by and exposure to antiepileptic, sedative, hypnotic, antiparkinsonian and psychotropic drugs (13)
9*Influenza due to other identified influenza virus with pneumonia (<5)Pedestrian injured in a collision with car, pick-up truck or van (9)Unknown cause of mortality (8)Epilepsy unspecified (10)
10*Myotonic disorders (<5)Assault by a sharp glass (8)Other developmental disorders of scholastic skills (8)Car driver injured in a collision with fixed or stationary object (10)
11*Pneumonitis due to inhalation of food and vomit (<5)Car driver injured in a collision with car, pick-up truck or van (10)
12*Other deletions of part of a chromosome (<5)Opioid dependence (10)
13*Sepsis unspecified organ (<5)
  • *In the intellectual disabilities group (after the 5th top cause of underlying deaths), there were 8 causes of death from this point that had equal numbers per cause. For this reason, 13 causes have been included in this column. In the control group (after the 9th top cause of contributing causes of deaths), there were 3 causes of death from this point that had equal numbers per cause. For this reason, 12 causes have been included in this column.

  • ICD-10, International Statistical Classification of Diseases and Related Health Problems, 10th Revision.