Socio-demographic characteristics of participating caregivers and their children
Participant | Quantitative sample (total=100) | Qualitative sample (total=20) |
N (%) | N (%) | |
Relationship to patient | ||
Mother | 76 (76) | 13 (65) |
Father | 22 (22) | 7 (35) |
Grandparent | 1 (1) | 0 (0) |
Sibling | 1 (1) | 0 (0) |
Gender | ||
Male | 23 (23) | 7 (35) |
Female | 77 (77) | 13 (65) |
Primary language | ||
Spanish (only) | 73 (73) | 13 (65) |
Spanish and English | 2 (2) | 0 (0) |
Spanish and Mayan dialect | 24 (24) | 7 (35) |
Mayan dialect (only) | 1 (1) | 0 (0) |
Ethnicity* | Data not collected | |
Ladino | 55 (56) | |
Indigenous (Mayan) | 25 (25) | |
Mixed race | 19 (19) | |
Religion | ||
Catholic | 41 (41) | 4 (20) |
Evangelical | 52 (52) | 13 (65) |
Other identified religion | 3 (3) | 2 (10) |
No religion | 4 (4) | 1 (5) |
Civil status* | ||
Married | 59 (60) | 13 (65) |
United (living together as if married) | 25 (25) | 6 (30) |
Separated | 1 (1) | 0 (0) |
Divorced | 10 (10) | 1 (5) |
Single | 4 (4) | 0 (0) |
Monthly household income (quetzales)* | Data not collected | |
<2000 | 36 (37) | |
2000–2999 | 23 (23) | |
>2999 | 39 (40) | |
Patient | ||
Age (years) | ||
0–5 | 38 (38) | 6 (30) |
6–10 | 19 (19) | 6 (30) |
11–15 | 31 (31) | 4 (20) |
16–18 | 12 (12) | 4 (20) |
Gender | ||
Male | 61 (61) | 11 (55) |
Female | 39 (39) | 9 (45) |
Diagnosis | ||
Leukaemia | 58 (58) | 13 (65) |
Lymphoma | 12 (12) | 2 (10) |
Histiocytic disorders | 2 (2) | 1 (5) |
Solid tumour | 25 (25) | 3 (15) |
Brain tumour | 3 (3) | 1 (5) |
*Ethnicity: one missing; civil status: one missing; monthly household income (quetzales): two missing.