Demographic and diagnostic data
| Patients (n=22) | Carers (n=17) | |
| Gender | ||
| Female | 11 | 12 |
| Male | 11 | 5 |
| Age (years) | ||
| 50–60 | 5 | 5 |
| 61–70 | 5 | 7 |
| 71–80 | 7 | 4 |
| 81–90 | 3 | 1 |
| 91 | 2 | 0 |
| Employment status | ||
| Employed | 1 | 8 |
| On sick leave | 6 | 1 |
| Retired | 15 | 8 |
| Living situation | ||
| Living alone | 10 | 2 |
| Living together | 10 | 15 |
| No answer | 2 | 0 |
| Education | ||
| Elementary school | 4 | 1 |
| High school | 7 | 5 |
| College/university | 11 | 11 |
| Country of birth | ||
| Sweden | 19 | 14 |
| Other European | 2 | 3 |
| Outside of Europe | 1 | 0 |
| Patient’s disease | ||
| Cancer* | 18 | – |
| Heart failure | 2 | – |
| Lung fibrosis | 1 | – |
| No answer | 1 | – |
| Patient’s disease duration (years) | ||
| <1 | 2 | – |
| 1–2 | 3 | – |
| 2–5 | 6 | – |
| 5–10 | 7 | – |
| >10 | 3 | – |
| No answer | 1 | – |
| Relationship to patient | ||
| Spouse/partner | – | 12 |
| Child | – | 3 |
| Sibling | – | 2 |
*Colon, breast, prostate, ovarian, bile duct, lung and pancreas cancer and malignant melanoma.