Overview of the respondents in the interviews, focus groups and consensus meeting
| Interviews (n=120) | Focus groups (n=35) | Consensus meeting (n=23) | |
| Patients | 67 | 6 | 4 |
| Family | 18 | 2 | 1 |
| Healthcare professionals | 35 | 16 | 6 |
| Managers | 0 | 11 | 7 |
| Researchers | 0 | 0 | 4 |
| Policymakers | 0 | 0 | 1 |