Sample characteristics
| People with ID (n=14) | Family carers (n=12) | Paid carers (n=12) | |
| Mean age (SD, range) | 46.1 years (12.9, 25–68) | 62.7 years (10.5, 42–80) | 39.4 years (9.5, 24–55) |
| Sex (M:F) | 9:5 | 3:9 | 6:6 |
| Ethnic group | White (n=8) Black (n=2) Asian (n=3) Other/mixed (n=1) | White (n=8) Black (n=1) Asian (n=3) Other/mixed (n=0) | White (n=7) Black (n=3) Asian (n=2) Other (n=0) |
| Degree of ID* | Mild (n=12) Moderate (n=2) | Mild (n=6) Moderate (n=4) Severe-profound (n=2) | N/A† |
| Relationship to person with ID/professional title | N/A | Parent (n=10) Other relative (n=2) | Support worker (n=8) Managerial responsibility (n=4) |
| Mean time working with people with ID (SD, range) | N/A | N/A | 9.4 years (9.0, 0.5–25) |
| Current living arrangements | Independent (n=3) With family (n=5) Shared supported living (n=6) | With family member with ID (n=9) Separately from family member with ID (n=3) | N/A‡ |
| Self-reported psychiatric diagnosis*§ | Severe mental illness† (n=6) Depression (n=6) Anxiety disorder (n=5) Other (n=2) | Severe mental illness† (n=4) Depression (n=4) Anxiety disorder (n=6) Other (n=0) | N/A‡ |
| Autism* | n=3 | n=5 | N/A‡ |
| Prescribed medication by group*§ | Antipsychotic (n=9) Mood stabiliser (n=3) Antidepressant (n=9) Other (n=3) | Antipsychotic (n=10) Mood stabiliser (n=2) Antidepressant (n=9) Other (n=4) | N/A‡ |
| Mean duration of psychotropic use (SD, range)* | 16.8 years (14.0, 3–50) | 13.6 years (8.0, 1–27) | N/A‡ |
| Mean interview duration (SD, range) | 24 min (9.0, 11–38) | 38 min (10.9, 19–55) | 47 min (11.9, 31–73) |
*Information provided by family carers relates to the person with ID they cared for.
†Severe mental illness includes schizophrenia spectrum disorders and bipolar affective disorder.
‡Data for paid carers were not collected as each paid carer worked with more than one individual with ID.
§Cell total exceeds the number in each group as people were able to report more than one diagnosis and may have been prescribed medication from more than one psychotropic class.
ID, intellectual disability; N/A, not applicable.