Table 1

Participants

Condition	Identifier	Parent	Sex of child	Child’s age at interview	Intensive or high dependency care admission
Condition	Identifier	Mother/father	Sex of child	Child’s age at interview	Intensive or high dependency care admission
Exomphalos*	1	M	m	18 months	Yes
	2	M	f	6 years	Yes
	3	M	f	8 years	Yes
	5	M and F	f	8 years	Yes
	13	M and F	m	25 years	No
	16/17	M and F	m	13 years	Yes
	19	M	f	16 months	Yes
	41/42	M and F	m	Died age 7 months	Yes
Necrotising enterocolitis	8	M	m	9 months	Yes
	9	M	m	11 months	Yes
	23	M	m	6 months	Yes
Hernia	26/27	M and F	f	9 months	No
Congenital diaphragmatic hernia*	11	M and F	m	9 months	Yes
	15	M	m	5 years	Yes
	24	M	m	9 years	Yes
Hirschsprung’s disease*	18	M	f	1 year	No
	20/21	M and F	m	4 months	Yes
	22	M	m	16 months	No
	39/40	M and F	m	5 years old	No
	43/44	M and F	m	5 years old	No
Gastroschisis*	30	M	m	7 ½ months	Yes
	31	M	m	4 years	Yes
	32	M	f	3 years	Yes
	33/34	M and F	m	3 months	Yes
	36	M	f	19 months	Yes
	37	M	f	6 years	Yes
Short bowel	35	M	f	7 years	Yes
Jejunal atresia*	25	M	f	4 months	Yes
Oesophageal atresia with tracheo-oesophageal fistula*	38		m	19 months	Yes
Undiagnosed	14		m	6 months

*Congenital diagnosis.