Patient assessment schedule
Outcome | Measurement tool | Validated | Baseline | 8 weeks | Every 3 months | After death |
---|---|---|---|---|---|---|
Demographics | Demographic questionnaire | ✓ | ||||
Patient understanding of survival time | Prognosis survey and the iTool | ✓ | ✓ | ✓ | ||
Patient/family/healthcare provider communication about EOL care | EOL communication with family and healthcare providers questionnaire | ✓ | ✓ | |||
Quality of life | EQ-5D5L | ✓ | ✓ | ✓ | ✓ | |
Preference for quantity or quality of life | Discrete choice experiment | ✓ | ✓ | |||
Patient satisfaction with care | Satisfaction with care survey | ✓ | ||||
Costs of ACP | Costs of care survey | ✓ | ✓ | ✓ | ||
Satisfaction with intervention | Satisfaction with ACP intervention (intervention arm only) | ✓ | ||||
The documentation of patient preferences for EOL care and concordance with care received at the EOL | Medical record review form | ✓ | ||||
Prevalence, timing and location of EOL care documents | Medical record review form | ✓ |